HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

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HLHS Pullovers

HLHS Pullovers

*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.*

We received quite a few requests regarding our HLHS pullovers so [...]

Wed, Nov 23 12:45pm

HLHS Survivors Come Together in Annual Celebration of Life

HLHS Survivors Come Together in Annual Celebration of Life

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Once upon a time, "happily ever after" wasn't a phrase associated with hypoplastic left heart syndrome, or HLHS. For many [...]

Tags: Brenton Ball, CHD, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Wed, Nov 16 9:55am

Mayo Clinic HLHS is now on Instagram!

Mayo Clinic HLHS is now on Instagram!

Head on over to Instagram to follow us @MayoClinicHLHS to learn more about the ongoing HLHS research, stay up-to-date on ways to participate in transforming the future of [...]

Tags: beating cells, CHD, HLHS, Hypoplastic Left Heart Syndrome, mayo clinic, research, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Fri, Nov 4 11:25am

Protecting Against the Flu and RSV

Protecting Against the Flu and RSV

It’s that time again. The leaves are starting to change to vibrant colors of orange, red, and yellow. The chilly weather prompts you to dig out your cozy sweaters and [...]

Tags: flu, HLHS, Hypoplastic Left Heart Syndrome, rsv, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, Oct 27 10:57am

Thanks for Attending Feel the Beat 2016!

Thanks for Attending Feel the Beat 2016!

Thank you to all who attended our fourth annual Feel the Beat event on Saturday, October 8. It was a fun-filled day focused on collaboration that brought together patients, families, [...]

Tags: Christina Deshaw, collaboration, Feel the Beat, Feel the Beat 2016, Kelly DiMaggio, mayo clinic, meagan broucek, stacey lihn, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, HLHS, Hypoplastic Left Heart Syndrome

Fri, Oct 21 12:00pm

HLHS Pullovers

HLHS Pullovers

*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.*

We received quite a few requests regarding our HLHS pullovers so [...]

Tags: HLHS, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Wed, Nov 23 12:44pm

Can’t Attend Feel the Beat in Person? Join Us Online!

Can’t Attend Feel the Beat in Person? Join Us Online!

Our Feel the Beat event on October 8 is fast approaching! We are excited to see you all in Rochester, Minnesota. However, we also realize that Minnesota might be a [...]

Tags: Christina Deshaw, Feel the Beat 2016, HLHS: Feel the Beat, Kelly DiMaggio, mayo clinic, meagan broucek, Sisters by Heart, stacey lihn, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, HLHS, Hypoplastic Left Heart Syndrome

Thu, Sep 29 3:30pm

Feel the Beat 2015: Research Showcase

Feel the Beat 2015: Research Showcase

FTB 2015 bracelets

If you weren’t able to attend our third annual Feel the Beat event but want to know [...]

Tags: Feel the Beat 2015, HLHS, HLHS: Feel the Beat, Hypoplastic Left Heart Syndrome, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, Dec 10 2:06pm

Fontan Surgery and the Liver

Fontan Surgery and the Liver

Recently, more and more people have been mentioning possible liver issues after the Fontan surgery. We wanted to find out more information so we sat down with Dr. Frank Cetta, Chair, Pediatric Cardiology at Mayo Clinic to discuss the topic.HLHS heart with label

Q: There has recently been some talk about possible issues with Fontan surgery and the liver. What exactly does this mean and why are we just beginning to talk about it?

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Tags: CHD, fontan, HLHS, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Tue, Jun 2 1:23pm

Feel the Beat 2016 Itinerary

Feel the Beat 2016 Itinerary

 

Feel the Beat is almost here so make sure you register!  Here's a peek into the day's activities on October 8. Can't wait to see you [...]

Tags: CHD, Feel the Beat 2016, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, Christina Deshaw, HLHS, Kelly DiMaggio, meagan broucek, stacey lihn, Hypoplastic Left Heart Syndrome, mayo clinic

Thu, Sep 22 1:39pm

Attending Feel the Beat? Here what you need to know about Rochester, MN

Attending Feel the Beat? Here what you need to know about Rochester, MN

If you are attending Feel the Beat on October 8, you’ll want to know everything that Rochester, MN has to offer. We’ve got you covered to help with your planning! [...]

Tags: CHD, Feel the Beat, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Fri, Sep 16 12:59pm

Feel the Beat 2016: Christina DeShaw and Kelly DiMaggio

Feel the Beat 2016: Christina DeShaw and Kelly DiMaggio

We are excited to announce two more guest speakers who will be joining Stacey Lihn and Meagan Broucek during our Feel the Beat event on October 8. We can’t wait [...]

Tags: Christina Deshaw, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Kelly DiMaggio, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Fri, Sep 9 3:51pm

What you need to know about umbilical cord blood banking

What you need to know about umbilical cord blood banking

We recently sat down with Susana Cantero Peral, M.D., Ph.D., and cord blood expert here at the Todd and Karen Wanek Family Program for HLHS. She provided some insight into [...]

Tags: cord blood, HLHS, Hypoplastic Left Heart Syndrome, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, UCB, umbilical cord blood

Wed, Sep 7 10:10am

You're Invited to Feel the Beat 2016!

You're Invited to Feel the Beat 2016!

Join us for our fourth annual Feel the Beat event on October 8, 2016! Check back soon to read about the exciting guest speakers who will be joining us this [...]

Tags: Feel the Beat 2016, HLHS, HLHS: Feel the Beat, Hypoplastic Left Heart Syndrome, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Mon, Aug 15 8:41am

Feel the Beat 2016: Stacey Lihn and Meagan Broucek

Feel the Beat 2016: Stacey Lihn and Meagan Broucek

Our fourth annual Feel the Beat event on October 8 will feature a wide variety of guest speakers. Here are two guest speakers we are excited to welcome. Check back [...]

Wed, Aug 31 1:10pm

What is Feel the Beat and why should you attend?

What is Feel the Beat and why should you attend?

In 2013, team members of the Todd and Karen Wanek Family Program for HLHS wanted to find a way to thank research participants and their families for all that they [...]

Tags: Feel the Beat, Feel the Beat 2016, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Fri, Aug 26 3:02pm

Half a Heart, but Beating Strong

Half a Heart, but Beating Strong

HLHS_7.18

 

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The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network [...]

Tags: CHD, CHD awareness, HLHS awareness, Hypoplastic Left Heart Syndrome, HLHS, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, Jul 28 12:56pm

New Clinical Trial Using Bone Marrow Stem Cells

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is excited to announce a new clinical trial for children and adults with single right ventricles.  This [...]

Tags: bone marrow, bone marrow stem cells, CHD, clinical trials, HLHS, Hypoplastic Left Heart Syndrome, stem cell, stem cells, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, Jul 21 1:58pm

Genetics of Hypoplastic Left Heart Syndrome

Genetics of Hypoplastic Left Heart Syndrome

Doctors D. Woodrow Benson from the Medical College of Wisconsin, Milwaukee,  Lisa J. Martin from Cincinnati Children's Hospital Medical Center, and Cecilia W. Lo from the University of Pittsburgh School [...]

Tags: CHD, congenital heart defects, HLHS, HLHS research, Hypoplastic Left Heart Syndrome

Wed, Jun 29 10:12am

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