HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

image-c973e6ffe2e5

image-63f2ffa6819d

image-911037a1f57c

Feel the Beat 2015: Research Showcase

Feel the Beat 2015: Research Showcase

FTB 2015 bracelets

If you weren’t able to attend our third annual Feel the Beat event but want to know [...]

Tags: Feel the Beat 2015, HLHS, HLHS: Feel the Beat, Hypoplastic Left Heart Syndrome, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, Dec 10 2:06pm

Fontan Surgery and the Liver

Fontan Surgery and the Liver

Recently, more and more people have been mentioning possible liver issues after the Fontan surgery. We wanted to find out more information so we sat down with Dr. Frank Cetta, Chair, Pediatric Cardiology at Mayo Clinic to discuss the topic.HLHS heart with label

Q: There has recently been some talk about possible issues with Fontan surgery and the liver. What exactly does this mean and why are we just beginning to talk about it?

[...]

Tags: CHD, fontan, HLHS, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Tue, Jun 2 1:23pm

Feel the Beat 2016 Itinerary

Feel the Beat 2016 Itinerary

Feel the Beat is almost here so make sure you register!  Here's a peek into the day's activities on October 8. Can't wait to see you there!
[...]

Tags: CHD, Feel the Beat 2016, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, Christina Deshaw, HLHS, Kelly DiMaggio, meagan broucek, stacey lihn

Thu, Sep 22 1:39pm

Attending Feel the Beat? Here what you need to know about Rochester, MN

Attending Feel the Beat? Here what you need to know about Rochester, MN

If you are attending Feel the Beat on October 8, you’ll want to know everything that Rochester, MN has to offer. We’ve got you covered to help with your planning! [...]

Fri, Sep 16 12:59pm

Feel the Beat 2016: Christina DeShaw and Kelly DiMaggio

Feel the Beat 2016: Christina DeShaw and Kelly DiMaggio

We are excited to announce two more guest speakers who will be joining Stacey Lihn and Meagan Broucek during our Feel the Beat event on October 8. We can’t wait [...]

Tags: Christina Deshaw, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Kelly DiMaggio, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Fri, Sep 9 3:51pm

What you need to know about umbilical cord blood banking

What you need to know about umbilical cord blood banking

We recently sat down with Susana Cantero Peral, M.D., Ph.D., and cord blood expert here at the Todd and Karen Wanek Family Program for HLHS. She provided some insight into [...]

Wed, Sep 7 10:10am

You're Invited to Feel the Beat 2016!

You're Invited to Feel the Beat 2016!

Join us for our fourth annual Feel the Beat event on October 8, 2016! Check back soon to read about the exciting guest speakers who will be joining us this [...]

Tags: Feel the Beat 2016, HLHS, HLHS: Feel the Beat, Hypoplastic Left Heart Syndrome, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Mon, Aug 15 8:41am

Feel the Beat 2016: Stacey Lihn and Meagan Broucek

Feel the Beat 2016: Stacey Lihn and Meagan Broucek

Our fourth annual Feel the Beat event on October 8 will feature a wide variety of guest speakers. Here are two guest speakers we are excited to welcome. Check back [...]

Wed, Aug 31 1:10pm

What is Feel the Beat and why should you attend?

What is Feel the Beat and why should you attend?

In 2013, team members of the Todd and Karen Wanek Family Program for HLHS wanted to find a way to thank research participants and their families for all that they [...]

Tags: Feel the Beat, Feel the Beat 2016, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Fri, Aug 26 3:02pm

Half a Heart, but Beating Strong

Half a Heart, but Beating Strong

HLHS_7.18

 

------------------------------------------------------------------------------------------------------------------------------------
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network [...]

Tags: CHD, CHD awareness, HLHS awareness, Hypoplastic Left Heart Syndrome, HLHS, mayo clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, Jul 28 12:56pm

New Clinical Trial Using Bone Marrow Stem Cells

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is excited to announce a new clinical trial for children and adults with single right ventricles.  This [...]

Tags: bone marrow, bone marrow stem cells, CHD, clinical trials, HLHS, Hypoplastic Left Heart Syndrome, stem cell, stem cells, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, Jul 21 1:58pm

Genetics of Hypoplastic Left Heart Syndrome

Genetics of Hypoplastic Left Heart Syndrome

Doctors D. Woodrow Benson from the Medical College of Wisconsin, Milwaukee,  Lisa J. Martin from Cincinnati Children's Hospital Medical Center, and Cecilia W. Lo from the University of Pittsburgh School [...]

Tags: CHD, congenital heart defects, HLHS, HLHS research, Hypoplastic Left Heart Syndrome

Wed, Jun 29 10:12am

Mayo Researchers Use Stem Cells to Try and Heal Baby Lucas’ Heart

Mayo Researchers Use Stem Cells to Try and Heal Baby Lucas’ Heart

We recently highlighted Lucas Gutman’s story on our social media outlets, but his story was also featured in a Mayo publication called In the Loop. Check out how Lucas became [...]

Tags: clinical trials, congenital heart defects, HLHS, Hypoplastic Left Heart Syndrome, mayo clinic, regenerative medicine, stem cell, stem cells, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Fri, Jun 24 7:47am

2016 IMPACT Winners

2016 IMPACT Winners

Held on March 5, the Innovative Minds Partnering to Advance Curative Therapies (IMPACT) program engaged 135 undergraduate students from 19 different Minnesota colleges. In addition to the students, [...]

Tags: bipolar disorder, HLHS, Hypoplastic Left Heart Syndrome, Impact, ovarian cancer, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Mon, Jun 20 11:08am

Kendra Grace Turner

Kendra Grace Turner

Jay and Heather Turner are a sweet and energetic young couple from North Dakota. The two met in high school and happily married in 2011. Shortly thereafter, they had their [...]

Tags: congenital heart defects, fontan, Glenn Procedure, HLHS, Kendra Grace Turner, patient story, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, Jun 2 10:07am

Baby Lucas

Baby Lucas

Born with hypoplastic left heart syndrome (HLHS), Lucas Gutman has already experienced quite a bit in his short 10 months of life, including two open heart surgeries.  Another one of [...]

Tags: CHD, mayo clinic, regenerative therapy, stem cell, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood

Wed, May 25 10:38am

A Mother’s Perspective: Congenital Heart Disease

A Mother’s Perspective: Congenital Heart Disease

 
We came across this inspiring blog post from the Pediatric Congenital Heart Association.  Five mothers give truthful answers about what it is like to have a child with [...]

Tags: CHD, HLHS, Pediatric Congenital Heart Association, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Tue, May 24 2:17pm

The Possibilities of Bone Marrow Stem Cells

The Possibilities of Bone Marrow Stem Cells

Today, researchers and clinicians are using regenerative medicine to repair unhealthy tissues. By using stem cells from within the body, doctors surgically deliver these stem cells into damaged tissues to [...]

Tags: bone marrow, bone marrow stem cells, clinical trials, HLHS, regenerative medicine, stem cell, stem cells, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome

Thu, May 19 1:06pm

Happy Mother's Day!

 

With Mother's Day just around the corner, the team at the Todd and Karen Wanek Family Program for HLHS would like to take a minute to acknowledge, honor [...]

Tags: #moms, #mothersday

Fri, May 6 8:00am

Contact Us · Privacy Policy