Posted on November 5th, 2013 by jthebiay
Children born with HLHS are generally destined for one of two paths: heart transplant or the three-staged surgical procedures resulting in a Fontan circulation. For some children born with milder forms of HLHS, however, this may not be the case. In a recent report published in the Annals of Thoracic Surgery, Biventricular Repair After Stage II Univentricular Surgery: Palliation Is Not a One-Way Path, Drs. Muhammad Yasir Qureshi, Harold Burkhart, and Donald Hagler show that the left ventricle may continue to [...]
Posted on September 23rd, 2013 by jthebiay
October 5th is coming fast! We hope you can join us for our inaugural HLHS: Feel the Beat event.
The day will begin at noon, in the Nathan Landow Atrium in the subway level of the Gonda Building. The entrance to the Gonda building is located on 3rd Ave. NW. You may also enter from 2nd Ave NW across from the Kahler Grand Hotel. Doors will open at 11:45 a.m.
The welcome ceremony will begin promptly at 12:00 p.m. At this time, we will also remember and honor all of the angels who continue to motivate and inspire [...]
Posted on August 20th, 2013 by jthebiay
HLHS Feel the Beat – It’s All Because of You
Please join us Saturday, October 5, 2013
as we gather to celebrate all that we have done
to advance the care and treatment of
Our team of leading scientists, researchers and physicians will host an educational patient and family appreciation event to showcase the work we've done with your help. We can’t do this without you. Join us to see how your contributions to our ongoing research are making a difference.
Hoping: Your stories make a difference and we are eager to hear them.
Posted on August 7th, 2013 by jthebiay
In an article called "Advances That Regrow Babies' Hearts" (July 23rd, 2013), the Wall Street Journal featured two studies for HLHS - one focusing on the left ventricle and one on the right. Dr. Harold Burkhart from Mayo Clinic and Dr. Sitaram Emani from Children's Hospital of Boston discussed their respective studies and the potential impact this may have with those with HLHS.
Posted on July 19th, 2013 by jthebiay
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome is excited to invite you to take part in an inaugural HLHS event at Mayo Clinic, Rochester, Minn. The program would like to take this opportunity to thank all of our families that make this research possible by giving you an inside look at how your contributions to our research are truly making a difference and will ultimately change the lives of those affected with HLHS in the future!
Please come and join us for a day of fun! All are welcome to attend – HLHS families, friends, and anyone who is interested in learning about congenital heart disease treatment and research at [...]
Posted on June 28th, 2013 by Mindy Rice
To better understand and treat HLHS, our team is taking a multifaceted approach that includes research into imaging and outcomes, human genetics, and regenerative strategies. The program's goal is to launch clinical trials that offer the latest advances in cell therapy to people with HLHS with the ultimate goal of delaying, or even preventing, the need for heart transplants in people with HLHS.
Recently, the Minneapolis Star Tribune visited Mayo Clinic to discuss the upcoming launch of the umbilical cord blood clinical trial. The resulting story highlights the necessity of integrating research and clinical practice, as well as patient participation and engagement, to accelerate new treatment options for those with HLHS.
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome at Mayo Clinic takes another step toward its goal of delaying or preventing heart transplant for people affected with Hypoplastic Left Heart Syndrome, with the announcement of a stem cell-based clinical trial for HLHS. The clinical trial aims to determine how stem cells derived from autologous umbilical cord blood, and then delivered into the muscle of the right side of the heart at the time of the Glenn procedure, can help children with HLHS.
Parents of a child who has been diagnosed in utero with a congenital heart defect, such as Hypoplastic Left Heart Syndrome (HLHS), often learn during pregnancy about banking the child's umbilical cord blood. Susana Cantero Peral, M.D., a postdoctoral researcher who specializes in cord blood for the Todd and Karen Wanek Family Program for HLHS, talked with me about collecting, banking and the potential regenerative properties of cord blood.
When you decide to bank your baby’s cord blood, what is actually collected is the blood that remains in the blood vessels of the placenta and in the portion of the umbilical cord attached to it. Umbilical cord blood contains all of the normal elements of blood – red cells, white cells, platelets and plasma. It is also rich in hematopoietic (blood-forming) stem cells, similar [...]