HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

Items Tagged ‘Todd and Karen Wanek Family Program for HLHS’

November 23, 2016

HLHS Pullovers

By Suzanne R. Ferguson suzannerferguson

*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.* We received quite a few requests regarding our HLHS pullovers so we have now made them available for purchase. Make sure to place your orders by December 9!   To order pullover shirts: Enter the site: http://mayohlhs.idworks.com/ […]

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Tags: HLHS, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


November 4, 2016

Mayo Clinic HLHS is now on Instagram!

By Suzanne R. Ferguson suzannerferguson

Head on over to Instagram to follow us @MayoClinicHLHS to learn more about the ongoing HLHS research, stay up-to-date on ways to participate in transforming the future of HLHS, and read HLHS patient stories. While you are on Instagram, check out the fascinating video we have of beating cardiomyocytes, also known as heart muscle cells. […]

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Tags: beating cells, CHD, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, research, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


October 27, 2016

Protecting Against the Flu and RSV

By Suzanne R. Ferguson suzannerferguson

It’s that time again. The leaves are starting to change to vibrant colors of orange, red, and yellow. The chilly weather prompts you to dig out your cozy sweaters and warm jackets, and every store and coffee shop have begun selling pumpkin flavored goods. Unfortunately, that also means flu season is upon us. Healthy children […]

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Tags: flu, HLHS, Hypoplastic Left Heart Syndrome, rsv, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


September 7, 2016

What you need to know about umbilical cord blood banking

By Suzanne R. Ferguson suzannerferguson

We recently sat down with Susana Cantero Peral, M.D., Ph.D., and cord blood expert here at the Todd and Karen Wanek Family Program for HLHS. She provided some insight into the whole process of umbilical cord blood banking and how the cell-rich umbilical cord blood can possibly be used in the future to treat diseases. […]

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Tags: cord blood, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, UCB, umbilical cord blood


April 20, 2016

Ethan Bortnick April 10th, 2016 Concert

By Jennifer Miller jenmiller

  Ethan Bortnick performed an amazing concert on Sunday, April 10th at the Mayo Civic Center here in Rochester! It was an afternoon spent enjoying the wonderful music from Ethan and the Bella Fiore and Bella Voce Young Women’s Choirs as well as spreading awareness for HLHS. We were so honored to have so many […]

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Tags: Ethan Bortnick, HLHS, HLHS research, Mayo Clinic, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


February 18, 2015

CHD Awareness Week: Heart Heroes

By Suzanne R. Ferguson suzannerferguson

Thank you to all who participated in CHD Awareness Week! We asked our followers to tweet us photos of their heart heroes so here’s a few of the adorable pictures. Don’t forget to follow us on Twitter at MayoClinicHLHS. ———————————————————————————————————————————— The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a […]

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Tags: CHD, CHD awareness week, heart hero, HLHS, Mayo Clinic, Todd and Karen Wanek Family Program for HLHS


December 16, 2014

Your HLHS Child and Feeding

By Jennifer Miller jenmiller

  We heard your questions on Twitter and are here to bring you answers on HLHS and feeding. We sat down with Dr. Chris Moir, pediatric surgeon, and Penny Roskos, R.N., CNP, of Mayo Clinic’s Children’s Center to get some insight into the issue.   Q: What makes congenital heart disease and feeding so challenging?  […]

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Tags: Chris Moir, Feeding, G tube, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic Children's Center, NG tube, Penny Roskos, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


December 9, 2014

Smith Family Shares Special Game Day Experience with Carolina Panthers’ Greg Olsen

By Jennifer Miller jenmiller

On Sunday, November 30th , the Smith family of Minnesota participated in a NFL game day experience unlike any before. The Smiths were the lucky winners at last month’s second annual Feel the Beat event at Mayo Clinic of football tickets generously donated by Carolina Panthers’ tight end, Greg Olsen. They not only had excellent seats for […]

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Tags: Carolina Panthers, Greg Olsen, HLHS, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


December 8, 2014

Thanks to All Who Made Our Second Annual Feel the Beat a Success!

By Jennifer Miller jenmiller

  Thank you to all who attended the second annual Feel the Beat at Mayo Clinic! It was great to see so many excited and smiling faces of the people who are helping to make a difference in the HLHS community. The theme of our fun-filled day was hope. Here at the Todd and Karen […]

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Tags: Caring Canines, Feel the Beat, Feel the Beat 2014, HLHS: Feel the Beat, Jason and Susan Smith, Meghan Roswick, Nick Zerwas, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


November 24, 2014

HLHS Hero: Kelly DiMaggio, Age 25 – Part 2

By Jennifer Miller jenmiller

Kelly DiMaggio was born with HLHS. The first few years of her life consisted of open heart surgeries and procedures to increase her blood flow and oxygen levels.  After successful operations, Kelly continued to thrive. Part I of Kelly’s story can be found here.     From 1996 to 2010, Kelly did well, only seeing the […]

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Tags: ASD, HLHS, Hypoplastic Left Heart Syndrome, Kelly DiMaggio, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


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