HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

Items Tagged ‘Hypoplastic Left Heart Syndrome’

January 24, 2017

Using Regenerative Medicine to Find Answers for Hypoplastic Left Heart Syndrome

By Suzanne R. Ferguson suzannerferguson

The goal of the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is to discover how regenerative medicine, also known as the use of stem cells, can make HLHS hearts bigger, better and stronger in order to delay or even prevent heart failure. In the video below, Dr. Timothy Nelson, director, […]

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Tags: CHD, clinical trials, Dr. Timothy Nelson, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, regenerative medicine, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood


December 20, 2016

Helping the HLHS Heart Grow Stronger

By Suzanne R. Ferguson suzannerferguson

Our main goal at the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome(HLHS) is to delay and prevent heart failure for individuals with HLHS. The video below discusses how we are using stem cells to grow the heart stronger.     For any questions, please email us at HLHS@mayo.edu. ———————————————————————————————————– The Todd […]

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Tags: bone marrow cells, CHD, cord blood, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood


November 29, 2016

HLHS Health Journal – New App to Keep Track of Health

By Suzanne R. Ferguson suzannerferguson

  The Todd and Karen Wanek Family Program is excited to announce a new collaboration with Sisters by Heart and Empatheia to provide the HLHS Health Journal, a new app for individuals and families to help keep track of important daily vitals and improve clinical care. HLHS Health Journal makes it easier for individuals and […]

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Tags: HLHS, hlhs app, hlhs health journal, Hypoplastic Left Heart Syndrome, Mayo Clinic, Sisters by Heart, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


November 23, 2016

HLHS Pullovers

By Suzanne R. Ferguson suzannerferguson

*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.* We received quite a few requests regarding our HLHS pullovers so we have now made them available for purchase. Make sure to place your orders by December 9!   To order pullover shirts: Enter the site: http://mayohlhs.idworks.com/ […]

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Tags: HLHS, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


November 16, 2016

HLHS Survivors Come Together in Annual Celebration of Life

By Suzanne R. Ferguson suzannerferguson

Once upon a time, “happily ever after” wasn’t a phrase associated with hypoplastic left heart syndrome, or HLHS. For many years, parents were simply advised to make the most of their brief time with children born with the rare heart defect. That’s one of the reasons the annual “Feel the Beat” event at Mayo Clinic’s […]

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Tags: Brenton Ball, CHD, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


November 4, 2016

Mayo Clinic HLHS is now on Instagram!

By Suzanne R. Ferguson suzannerferguson

Head on over to Instagram to follow us @MayoClinicHLHS to learn more about the ongoing HLHS research, stay up-to-date on ways to participate in transforming the future of HLHS, and read HLHS patient stories. While you are on Instagram, check out the fascinating video we have of beating cardiomyocytes, also known as heart muscle cells. […]

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Tags: beating cells, CHD, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, research, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


October 27, 2016

Protecting Against the Flu and RSV

By Suzanne R. Ferguson suzannerferguson

It’s that time again. The leaves are starting to change to vibrant colors of orange, red, and yellow. The chilly weather prompts you to dig out your cozy sweaters and warm jackets, and every store and coffee shop have begun selling pumpkin flavored goods. Unfortunately, that also means flu season is upon us. Healthy children […]

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Tags: flu, HLHS, Hypoplastic Left Heart Syndrome, rsv, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


October 21, 2016

Thanks for Attending Feel the Beat 2016!

By Suzanne R. Ferguson suzannerferguson

Thank you to all who attended our fourth annual Feel the Beat event on Saturday, October 8. It was a fun-filled day focused on collaboration that brought together patients, families, advocates, researchers, and doctors from over 15 different states. Some of the highlights from the day include learning firsthand about the exciting research taking place […]

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Tags: Christina Deshaw, collaboration, Feel the Beat, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Kelly DiMaggio, Mayo Clinic, meagan broucek, stacey lihn, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


September 29, 2016

Can’t Attend Feel the Beat in Person? Join Us Online!

By Suzanne R. Ferguson suzannerferguson

Our Feel the Beat event on October 8 is fast approaching! We are excited to see you all in Rochester, Minnesota. However, we also realize that Minnesota might be a bit far for some of you to travel. That’s why we are making it easier for you to attend from your own home (or any […]

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Tags: Christina Deshaw, Feel the Beat 2016, HLHS, HLHS: Feel the Beat, Hypoplastic Left Heart Syndrome, Kelly DiMaggio, Mayo Clinic, meagan broucek, Sisters by Heart, stacey lihn, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


September 22, 2016

Feel the Beat 2016 Itinerary

By Suzanne R. Ferguson suzannerferguson

  Feel the Beat is almost here so make sure you register!  Here’s a peek into the day’s activities on October 8. Can’t wait to see you there!   Can’t make it to Rochester, MN on October 8? Follow us on Twitter that day to stay updated on the events and even ask our physicians […]

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Tags: CHD, Christina Deshaw, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Kelly DiMaggio, Mayo Clinic, meagan broucek, stacey lihn, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


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