HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

Items Tagged ‘CHD’

January 24, 2017

Using Regenerative Medicine to Find Answers for Hypoplastic Left Heart Syndrome

By Suzanne Ferguson suzannerferguson

The goal of the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is to discover how regenerative medicine, also known as the use of stem cells, can make HLHS hearts bigger, better and stronger in order to delay or even prevent heart failure. In the video below, Dr. Timothy Nelson, director, […]

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Tags: CHD, clinical trials, Dr. Timothy Nelson, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, regenerative medicine, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood


December 20, 2016

Helping the HLHS Heart Grow Stronger

By Suzanne Ferguson suzannerferguson

Our main goal at the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome(HLHS) is to delay and prevent heart failure for individuals with HLHS. The video below discusses how we are using stem cells to grow the heart stronger.     For any questions, please email us at HLHS@mayo.edu. ———————————————————————————————————– The Todd […]

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Tags: bone marrow cells, CHD, cord blood, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood


November 16, 2016

HLHS Survivors Come Together in Annual Celebration of Life

By Suzanne Ferguson suzannerferguson

Once upon a time, “happily ever after” wasn’t a phrase associated with hypoplastic left heart syndrome, or HLHS. For many years, parents were simply advised to make the most of their brief time with children born with the rare heart defect. That’s one of the reasons the annual “Feel the Beat” event at Mayo Clinic’s […]

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Tags: Brenton Ball, CHD, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


November 4, 2016

Mayo Clinic HLHS is now on Instagram!

By Suzanne Ferguson suzannerferguson

Head on over to Instagram to follow us @MayoClinicHLHS to learn more about the ongoing HLHS research, stay up-to-date on ways to participate in transforming the future of HLHS, and read HLHS patient stories. While you are on Instagram, check out the fascinating video we have of beating cardiomyocytes, also known as heart muscle cells. […]

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Tags: beating cells, CHD, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, research, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


September 22, 2016

Feel the Beat 2016 Itinerary

By Suzanne Ferguson suzannerferguson

  Feel the Beat is almost here so make sure you register!  Here’s a peek into the day’s activities on October 8. Can’t wait to see you there!   Can’t make it to Rochester, MN on October 8? Follow us on Twitter that day to stay updated on the events and even ask our physicians […]

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Tags: CHD, Christina Deshaw, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Kelly DiMaggio, Mayo Clinic, meagan broucek, stacey lihn, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


September 16, 2016

Attending Feel the Beat? Here what you need to know about Rochester, MN

By Suzanne Ferguson suzannerferguson

If you are attending Feel the Beat on October 8, you’ll want to know everything that Rochester, MN has to offer. We’ve got you covered to help with your planning! Accommodations The Feel the Beat registration page includes discounts for local hotels conveniently located in the downtown area. These hotels make Mayo Clinic easily accessible […]

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Tags: CHD, Feel the Beat, Feel the Beat 2016, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


July 28, 2016

Half a Heart, but Beating Strong

By Suzanne Ferguson suzannerferguson

  ———————————————————————————————————————————— The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and […]

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Tags: CHD, CHD awareness, HLHS, HLHS awareness, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


July 21, 2016

New Clinical Trial Using Bone Marrow Stem Cells

By Suzanne Ferguson suzannerferguson

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is excited to announce a new clinical trial for children and adults with single right ventricles.  This clinical trial uses stem cells obtained from a person’s bone marrow and delivers them into the heart muscle to hopefully make the heart grow stronger […]

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Tags: bone marrow, bone marrow stem cells, CHD, clinical trials, HLHS, Hypoplastic Left Heart Syndrome, stem cell, stem cells, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


June 29, 2016

Genetics of Hypoplastic Left Heart Syndrome

By Suzanne Ferguson suzannerferguson

Doctors D. Woodrow Benson from the Medical College of Wisconsin, Milwaukee,  Lisa J. Martin from Cincinnati Children’s Hospital Medical Center, and Cecilia W. Lo from the University of Pittsburgh School of Medicine recently published a paper on the genetics of hypoplastic left heart syndrome (HLHS). We asked one of our genetic researchers, Dr. Jeanne Theis, […]

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Tags: CHD, congenital heart defects, HLHS, HLHS research, Hypoplastic Left Heart Syndrome


May 25, 2016

Baby Lucas

By Suzanne Ferguson suzannerferguson

Born with hypoplastic left heart syndrome (HLHS), Lucas Gutman has already experienced quite a bit in his short 10 months of life, including two open heart surgeries.  Another one of those experiences is currently participating in Mayo Clinic’s Todd and Karen Wanek Family Program for HLHS.  Find out more about adorable Lucas and his inspiring […]

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Tags: CHD, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, regenerative therapy, stem cell, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood


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