HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

Jan 24, 2017

Using Regenerative Medicine to Find Answers for Hypoplastic Left Heart Syndrome

By Suzanne R. Ferguson @suzannerferguson
The goal of the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is to discover how regenerative medicine, also known as the use of stem cells, can make HLHS hearts bigger, better and stronger in order to delay or even prevent heart failure. In the video [...]
Dec 20, 2016

Helping the HLHS Heart Grow Stronger

By Suzanne R. Ferguson @suzannerferguson
Our main goal at the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome(HLHS) is to delay and prevent heart failure for individuals with HLHS. The video below discusses how we are using stem cells to grow the heart stronger.   https://www.youtube.com/watch?v=X45CDIrntuc&feature=youtu.be   For any questions, please email [...]
Nov 29, 2016

HLHS Health Journal – New App to Keep Track of Health

By Suzanne R. Ferguson @suzannerferguson
  The Todd and Karen Wanek Family Program is excited to announce a new collaboration with Sisters by Heart and Empatheia to provide the HLHS Health Journal, a new app for individuals and families to help keep track of important daily vitals and improve clinical care. HLHS Health Journal makes [...]
HLHS Health Journal – New App to Keep Track of Health
Nov 23, 2016

HLHS Pullovers

By Suzanne R. Ferguson @suzannerferguson
*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.* We received quite a few requests regarding our HLHS pullovers so we have now made them available for purchase. Make sure to place your orders by December 9!   To order pullover [...]
HLHS Pullovers
Nov 23, 2016

HLHS Pullovers

By Suzanne R. Ferguson @suzannerferguson
*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.* We received quite a few requests regarding our HLHS pullovers so we have now made them available for purchase. Make sure to place your orders by December 9!   To order pullover [...]
HLHS Pullovers
Nov 16, 2016

HLHS Survivors Come Together in Annual Celebration of Life

By Suzanne R. Ferguson @suzannerferguson
Once upon a time, "happily ever after" wasn't a phrase associated with hypoplastic left heart syndrome, or HLHS. For many years, parents were simply advised to make the most of their brief time with children born with the rare heart defect. That's one of the reasons the annual "Feel the [...]
HLHS Survivors Come Together in Annual Celebration of Life
Nov 4, 2016

Mayo Clinic HLHS is now on Instagram!

By Suzanne R. Ferguson @suzannerferguson
Head on over to Instagram to follow us @MayoClinicHLHS to learn more about the ongoing HLHS research, stay up-to-date on ways to participate in transforming the future of HLHS, and read HLHS patient stories. While you are on Instagram, check out the fascinating video we have of beating cardiomyocytes, also [...]
Mayo Clinic HLHS is now on Instagram!
Oct 27, 2016

Protecting Against the Flu and RSV

By Suzanne R. Ferguson @suzannerferguson
It’s that time again. The leaves are starting to change to vibrant colors of orange, red, and yellow. The chilly weather prompts you to dig out your cozy sweaters and warm jackets, and every store and coffee shop have begun selling pumpkin flavored goods. Unfortunately, that also means flu season [...]
Protecting Against the Flu and RSV
Oct 21, 2016

Thanks for Attending Feel the Beat 2016!

By Suzanne R. Ferguson @suzannerferguson
Thank you to all who attended our fourth annual Feel the Beat event on Saturday, October 8. It was a fun-filled day focused on collaboration that brought together patients, families, advocates, researchers, and doctors from over 15 different states. Some of the highlights from the day include learning firsthand about [...]
Thanks for Attending Feel the Beat 2016!
Sep 29, 2016

Can’t Attend Feel the Beat in Person? Join Us Online!

By Suzanne R. Ferguson @suzannerferguson
Our Feel the Beat event on October 8 is fast approaching! We are excited to see you all in Rochester, Minnesota. However, we also realize that Minnesota might be a bit far for some of you to travel. That’s why we are making it easier for you to attend from [...]
Can’t Attend Feel the Beat in Person? Join Us Online!
Sep 22, 2016

Feel the Beat 2016 Itinerary

By Suzanne R. Ferguson @suzannerferguson
  Feel the Beat is almost here so make sure you register!  Here's a peek into the day's activities on October 8. Can't wait to see you there!   Can’t make it to Rochester, MN on October 8? Follow us on Twitter that day to stay updated on the events [...]
Feel the Beat 2016 Itinerary
Sep 16, 2016

Attending Feel the Beat? Here what you need to know about Rochester, MN

By Suzanne R. Ferguson @suzannerferguson
If you are attending Feel the Beat on October 8, you’ll want to know everything that Rochester, MN has to offer. We’ve got you covered to help with your planning! Accommodations The Feel the Beat registration page includes discounts for local hotels conveniently located in the downtown area. These hotels [...]
Attending Feel the Beat? Here what you need to know about Rochester, MN
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