As he promised, Nightline's Bill Weir recently returned to visit the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome to watch his heart tissue, bioengineered from a piece of his skin, beat outside of his body. While he was here, he spent some time with Sophie, a 3-year-old HLHS warrior from Minnesota, and her family who has already contributed to HLHS research in a big way. It is because of the many families like Sophie's that we will find better solutions for those affected with HLHS. Watch the whole story on Nighline on ABC, on Friday at 11:35 p.m. central standard time.
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.