HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

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November 23, 2016

HLHS Pullovers

By Suzanne R. Ferguson suzannerferguson

*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.* We received quite a few requests regarding our HLHS pullovers so we have now made them available for purchase. Make sure to place your orders by December 9!   To order pullover shirts: Enter the site: http://mayohlhs.idworks.com/ […]

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November 23, 2016

HLHS Pullovers

By Suzanne R. Ferguson suzannerferguson

*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.* We received quite a few requests regarding our HLHS pullovers so we have now made them available for purchase. Make sure to place your orders by December 9!   To order pullover shirts: Enter the site: http://mayohlhs.idworks.com/ […]

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Tags: HLHS, Hypoplastic Left Heart Syndrome, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


May 12, 2016

Doctors from Mayo Clinic and The Children’s Hospital at OU Medical Center Collaborate on Research Around Rare Congenital Heart Defect

By Suzanne R. Ferguson suzannerferguson

OKLAHOMA CITY, OKLA. AND ROCHESTER, MINN. –   The Children’s Hospital at OU Medical Center in Oklahoma City and Mayo Clinic’s Todd and Karen Wanek Program for Hypoplastic Left Heart Syndrome (HLHS) are championing research and treatments for a rare congenital heart defect and recently published a collaborative article in “The Journal of Thoracic and Cardiovascular Surgery.” […]

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Tags: Dr. Burkhart, Dr. Harold Burkhart, Dr. Nelson, Dr. Timothy Nelson, regenerative therapy, research, stem cell, stem cells, The Children’s Hospital at OU Medical Center in Oklahoma City, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


May 6, 2016

Happy Mother’s Day!

By Jennifer Miller jenmiller

  With Mother’s Day just around the corner, the team at the Todd and Karen Wanek Family Program for HLHS would like to take a minute to acknowledge, honor and thank all of you hard working moms out there. There’s no doubt that this is the toughest job in the world, but it’s also the most […]

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Tags: #moms, #mothersday


April 28, 2016

An Evening with Ethan Bortnick: Saturday, April 30th

By Jennifer Miller jenmiller

    As you know, Rochester,MN  had the honor of hosting Ethan Bortnick live in concert on Sunday, April 10th. It was a wonderful afternoon of experiencing the power of music and spreading awareness for HLHS; it was a concert like no other! As the saying goes ‘All good things must come to an end’. […]

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Tags: CHD, Dr. Paul Grossfeld, Dr. Tim Nelson, Ethan Bortnick, HLHS, Hypoplastic Left Heart Syndrome, Little Hearts Big Hopes, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


April 20, 2016

Ethan Bortnick April 10th, 2016 Concert

By Jennifer Miller jenmiller

  Ethan Bortnick performed an amazing concert on Sunday, April 10th at the Mayo Civic Center here in Rochester! It was an afternoon spent enjoying the wonderful music from Ethan and the Bella Fiore and Bella Voce Young Women’s Choirs as well as spreading awareness for HLHS. We were so honored to have so many […]

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Tags: Ethan Bortnick, HLHS, HLHS research, Mayo Clinic, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


December 31, 2015

Happy New Year!

By Suzanne R. Ferguson suzannerferguson

Happy New Year from the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome! As we reflect back on 2015, it has certainly been a busy year for us! We released some exciting results including a study on family heart defect screenings and a study on a possible genetic cause for HLHS. We […]

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Tags: 2016, congenital heart defects, Happy New Year, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


December 23, 2015

Happy Holidays!

By Suzanne R. Ferguson suzannerferguson

We know it is a busy time for everyone with last minute shopping, visiting with friends and family and celebrating the holidays, but we would like to take a moment to reflect on all the progress we have made this past year. We are continuing our HLHS research every day and currently have three open […]

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Tags: holiday, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


November 11, 2015

MRI: An Important Imaging Tool for HLHS

By Suzanne R. Ferguson suzannerferguson

Magnetic resonance imaging (MRI) is an advanced imaging technique that uses radio waves and a magnetic field to display images of the body. It is used frequently in the medical field, especially in patients with HLHS, in addition to the echocardiogram. Echocardiograms can be taken quickly but they are usually limited by the amount of […]

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Tags: HLHS research, Hypoplastic Left Heart Syndrome, Mayo Clinic, MRI, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


August 12, 2015

Mayo Clinic’s Transplant Programs Rank High for Survival Rates

By Suzanne R. Ferguson suzannerferguson

Mayo Clinic’s transplant programs were recently recognized as the largest provider of transplants in the United States. A national database of transplant statistics, the Scientific Registry of Transplant Recipients (SRTR), ranked Mayo Clinic’s transplant programs in Arizona, Florida and Rochester statistically better than expected in terms of patient and graft survivals at the reported time […]

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Tags: CHD, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, transplant


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