HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

Congenital Heart Disease

January 24, 2017

Using Regenerative Medicine to Find Answers for Hypoplastic Left Heart Syndrome

By Suzanne R. Ferguson suzannerferguson

The goal of the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is to discover how regenerative medicine, also known as the use of stem cells, can make HLHS hearts bigger, better and stronger in order to delay or even prevent heart failure. In the video below, Dr. Timothy Nelson, director, […]

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Tags: CHD, clinical trials, Dr. Timothy Nelson, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, regenerative medicine, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood


December 20, 2016

Helping the HLHS Heart Grow Stronger

By Suzanne R. Ferguson suzannerferguson

Our main goal at the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome(HLHS) is to delay and prevent heart failure for individuals with HLHS. The video below discusses how we are using stem cells to grow the heart stronger.     For any questions, please email us at HLHS@mayo.edu. ———————————————————————————————————– The Todd […]

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Tags: bone marrow cells, CHD, cord blood, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood


October 27, 2016

Protecting Against the Flu and RSV

By Suzanne R. Ferguson suzannerferguson

It’s that time again. The leaves are starting to change to vibrant colors of orange, red, and yellow. The chilly weather prompts you to dig out your cozy sweaters and warm jackets, and every store and coffee shop have begun selling pumpkin flavored goods. Unfortunately, that also means flu season is upon us. Healthy children […]

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Tags: flu, HLHS, Hypoplastic Left Heart Syndrome, rsv, Todd and Karen Wanek Family Program for HLHS, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


July 28, 2016

Half a Heart, but Beating Strong

By Suzanne R. Ferguson suzannerferguson

  ———————————————————————————————————————————— The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and […]

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Tags: CHD, CHD awareness, HLHS, HLHS awareness, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


May 24, 2016

A Mother’s Perspective: Congenital Heart Disease

By Suzanne R. Ferguson suzannerferguson

  We came across this inspiring blog post from the Pediatric Congenital Heart Association.  Five mothers give truthful answers about what it is like to have a child with a congenital heart disease. It’s not always easy, but these mothers share their struggles and give advice for others in similar positions. We hope you enjoy this Q&A […]

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Tags: CHD, HLHS, Pediatric Congenital Heart Association, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


April 12, 2016

Camp Odayin – Connecting children with heart disease

By Suzanne R. Ferguson suzannerferguson

We think it is important to highlight the other work being done in the field of congenital heart disease as well as provide information about other programs and resources that might be helpful to families. One of our team members recently informed us about a camp right in our own backyard.  We would like to […]

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Tags: camp, camp odayin, CHD, HLHS, resources


March 15, 2016

Japanese Cell Therapy Study Demonstrates Impressive Results in the HLHS Field

By Suzanne R. Ferguson suzannerferguson

In the first clinical study of its kind, researchers at Okayama University Hospital in Japan have published groundbreaking results using stem cells in HLHS children. The researchers published two papers—one with patient results at 18 months and then again at 3 years. (Read the full studies here and here). The study is not only the […]

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Tags: cell based therapies, cell therapy, HLHS, Hypoplastic Left Heart Syndrome, regenerative therapy, stem cells, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


February 22, 2016

Join Us on March 5 for IMPACT at Mayo Clinic

By Suzanne R. Ferguson suzannerferguson

This year, the Mayo Clinic Office of Applied Scholarship and Education Science has partnered with Regenerative Medicine Minnesota to sponsor the Innovative Minds Partnering to Advance Curative Therapies (IMPACT) program. IMPACT is a competitive program open to Minnesota undergraduate students that encourages them to submit hypotheses for three different challenges. On March 5, participating teams […]

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Tags: CHD, HLHS, Hypoplastic Left Heart Syndrome, IMPACT


February 15, 2016

CHD Awareness Week Pictures

By Suzanne R. Ferguson suzannerferguson

Thanks to all who shared amazing pictures of their CHD heart heroes! Check out the collage we put together of all the pictures parents sent us either on Facebook or Twitter from February 7-14. What a great way to wrap up CHD Awareness Week! ———————————————————————————————————– The Todd and Karen Wanek Family Program for Hypoplastic Left […]

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Tags: CHD, CHD awareness week, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


February 10, 2016

Pioneering New Research Options for Congenital Heart Defects

By Suzanne R. Ferguson suzannerferguson

Congenital Heart Defect (CHD) Awareness Week gives us a great opportunity to share and discuss some of the research taking place at the Todd and Karen Wanek Family Program for HLHS. It is important to raise awareness of CHDs and to also recognize the ever evolving treatment options that are changing the future for people […]

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Tags: CHD, CHD awareness week, clinical trials, congenital heart defects, HLHS, regenerative medicine, stem cells, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome


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