HLHS Cause to Cure

Hypoplastic Left Heart Syndrome Program from Mayo Clinic

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December 20, 2016

Helping the HLHS Heart Grow Stronger

By Suzanne R. Ferguson

Our main goal at the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome(HLHS) is to delay and prevent heart failure for individuals with HLHS. The video below discusses how we are using stem cells to grow the heart stronger.

 

 

For any questions, please email us at HLHS@mayo.edu.

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The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.

Tags: bone marrow cells, CHD, Clinical Trials, Congenital Heart Disease, cord blood, HLHS, Hypoplastic Left Heart Syndrome, Mayo Clinic, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome, umbilical cord blood, Umbilical Cord Blood

I have a 13 year old son with HLHS how do I learn more about this study?

I have the same question as kepcox76 except my son is 18….

Hi @kepcox76 and @char2878. Send us an email at HLHS@mayo.edu and we will be happy to discuss everything in more detail!

How do I learn about this plz I have a hlhs son almost 14 yrs old but also as ph

I would love to hear more my son hlhs is 17 and he has been complaining that his chest is bothering him. He had all his surgeries in childrens hospital of Phila. He had all his surgeries from Dr.Spray

My son is 15 and has so many issues bc of his heart. Any information would be greatly appreciated . I jadeblakebrady@yahoo.com

@ellenmarie

My son is 15 and has so many issues bc of his heart. Any information would be greatly appreciated . I jadeblakebrady@yahoo.com

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Hi @leannehlhsmum, @lorraineh and @ellenmarie. Please send us an email at HLHS@mayo.edu. We will be happy to discuss everything in more detail. Thanks!

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