Christina Deshaw and her husband, Brad Weitl, were expecting twins. During the 18 week ultrasound one of the twins, Ava, was diagnosed with HLHS. Christina got home from this appointment, did some research online and quickly learned that her daughter had just been dianosed with a serious congenital heart defect. She then made a phone call to Dr. Benjamin Eiden, a pediatric cardiologist at Mayo Clinic in Rochester, Minnesota. A few weeks after consulting with Dr. Eidem, Ava was diagnosed with Restricitive Atrial Septum (RAS), which dropped the success rate of the Norwood from about 90% to 50%, according to Deshaw's blog, Ava Grace Life with an Extraordinary Heart.
Tags: Ava Weitl, Brad Weitl, Christina Deshaw, Dr. Benjamin Eidem, Dr. Harold Burkhart, Dr. Patrick O'Leary, Fontan, Glenn, HLHS, Mayo Clinic, Mayo Eugenio Litta Children's Hospital, Newborn heart surgery, Norwood, Patient Stories